Friday, April 16, 2010

Still haven't gotten the results of the echo back yet.

Later today I meet with a Boston geneticist who's known for his work with EDS, or so I hear. My PCP referred me to him so quickly - she actually had recognized the EDS symptoms & signs before I had even said a word to her about it!

I feel so scared, and yet almost elated to finally be able to get diagnosed with a type of EDS. I strive for the definitive in life.

I've had my wrist/arm in a brace for three days - I must have injured it while using a wire cutter. Oops. At least it doesn't hurt as much, though.

I am officially signed up for all my classes in order to return to school! You better believe I'm not giving up.

Tuesday, April 6, 2010

My back hurts so much today. I've been feeling like I want to just let myself slump even further than usual - and rest my head in my own lap. I feel so stupid saying this for some reason.

Tomorrow I have my echocardiogram to find out if my heart is affected by EDS.

I feel so lonely, and I'm tired of having to explain what EDS is to everyone. I think I might join that Boston group of people with Ehlers-Danlos. I hear there are only three members so far, but I really haven't heard anything about it other than that.

Meh, my gums hurt on the right side of my mouth. Maybe I should go floss and rinse with salt water..