Wednesday, March 31, 2010

Today, my fingers, knees, and especially elbows are absolutely killing me. Yesterday I went to my PCP and was showing her how my flexibility has increased (I never do this normally, mind you, because it stretches out my muscles so much and the last thing I need is to be more flexible). Even my jaw hurts and is cracking, but I don't really have an explanation for that one.

Next Tuesday, I'm getting my first Echo, and so will hopefully find out if I have any heart anomalies or issues pertaining to EDS.

I'm glad that doctors and my own parents are finally taking this seriously. It's scary feeling like you have no grip (literally) anymore. I have trouble opening bottles, writing (oh the hand cramps!), and twisting and pulling in general. Even opening a tupperware container is difficult, and sometimes I can't do it at all. I hate asking for help; I feel like my mom sees it as me being 'weak.'

It's absolutely dismal outside; dark and dreary and wet. I feel like just going to sleep, but I won't. I have more appointments to make and little animals to play with.
Well, as of right now, I am taking time off from school. I'm trying to get a job anywhere as a CNA (certified nursing assistant), but I'm having very little luck in getting interviews. I decided to start a public blog in hopes of helping to raise awareness for EDS as well as to connect to others who can relate. :)

RNs with EDS forum topic on ednf.org